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Ameriface
P.O. Box 751112
Las Vegas, NV 89136
(888) 486-1209
www.ameriface.org
A variety of resources for families of children with facial differences includes education materials, networking opportunities, a toll free support hotline, and more.
The Cleft Palate Foundation
1504 East Franklin St, Suite 102
Chapel Hill, NC 27514
(919) 933-9044
CLEFTLINE: (800) 24-CLEFT
www.cleftline.org
The Cleft Palate Foundation is a non-profit organization providing many resources such as state specific resources for patients and families affected by facial differences. They also run CLEFTLINE, a toll-free hotline providing information about clefts and other facial differences.
(Information also in Spanish)
Craniokids
www.craniokids.org
The goal of Craniokids is to provide a forum where families can seek and provide emotional support, share experiences, and learn about craniosynostosis. It is a web-based resource that provides family networking, support, and maintains a buddy list of families who have children with craniosynostosis.
Let's Face It
University of Michigan
School of Dentistry/Dentistry Library
Ann Arbor, MI 48109
www.dent.umich.edu/faceit
Let's Face It is a non-profit whose mission is "to advance knowledge about, by, and for people with facial differences and to promote their full and equal participation in society."
Pierre Robin Network
3604 Biscayne
Quincy, IL 62305
www.pierrerobin.org
The Pierre Robin Network offers detailed resources for families affected by Pierre Robin Sequence, as well as information on related conditions such as Beckwith-Wiedemann & Stickler Syndrome. The resource list provides information about feeding & speech issues, dental issues, & general support organizations.
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