Patient Stories

Children and families fondly remember their experiences at Connecticut Children’s. Read or watch stories from our patients and families, or submit your own.

 

Patient_Story_Cameron_HemOnc.jpgCameron's Story | Ewing's Sarcoma

In sixth grade, Cameron was diagnosed with Ewing’s sarcoma, a rare form of bone cancer that occurs primarily in children. But he didn’t let that slow him down. “He helps other kids going through what he went through, and to see that there’s life on the other side of treatment,” says Michael Isakoff, MD.

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Claire2.jpgClaire’s Story | Coarctation (Narrowing) of the Aorta

Upon birth, Claire was diagnosed as having a coarctation (narrowing) of the aorta, and she was immediately transferred to Connecticut Children's. On her fifth day of life, just as she began to show outward signs of heart failure, she underwent surgery to repair her heart. Now, her mother says, all that is necessary are annual checkups to ensure that everything is in working order.

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Patient_Story_ColeBraydon_Neonatology.jpgCole & Braydon's Story | NICU Care

Twins Cole and Braydon were born premature and in critical condition at only 24 weeks. Little by little, the boys improved. “If the NICU staff had not cared for them and us as they did, we would not be feeling as good as we are and the boys would not be doing as well as they are,” says their mother, Jen.

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Patient_Story_Daniela_HemOnc.jpgDaniela's Story | Beta Thalassemia Intermedia

Daniela had a life-threatening condition that was caught in the nick of time. “It’s like we have a new kid,” says her father, Dan. “She has basically caught back up to other kids her age even though she has this condition.”

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Drayton.jpgDrayton’s Story | NICU Care

In 2008, Drayton was born at 23 weeks and weighed less than a pound. He had a 15 percent chance of surviving and only a 3 percent chance of surviving without profound neurological problems. Yet, he fought, grew and went home after five months and five days, weighing 8 pounds. Today, he rides horses, loves animals and music, and wants to be a doctor when he grows up.

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Ethan2.jpgEthan’s Story | Cancerous Tumor

After discovering blood in his diaper, Ethan’s mother rushed him to Connecticut Children’s, where a cancerous tumor was found in his right kidney. “After what felt like the 10 longest days of our lives, Ethan was discharged from Connecticut Children’s with his right kidney and tumor removed,” his mother says. “To this day Ethan remains cancer free!”

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Jillian.jpgJillian's Story | Atrial Septal Defect & Ventricular Septal Defect

During Jillian’s one-month check-up, her pediatrician detected a heart murmur and suggested her parents visit Connecticut Children’s cardiology division, where they learned Jillian was born with two holes in her heart. “Within five months of our initial visit, we were told that there was no indication that the holes would close on their own and surgery was going to need to happen in about six weeks,” her mother says.

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Patient_Story_Kristin_Cardiology.jpgKristin's Story | Congenital Heart Disease

Kristin was born with a life-threatening cardiac defect in the late 1970s, and has been followed by Connecticut Children's pediatric cardiologists ever since. “I’m 36 years old and I tell people, ‘I go to a children’s hospital for my heart care,’ and I’m fine with that,” she says.

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Patient_Story_Olivia_Cardiology.jpgOlivia's Story | Pulmonary Atresia

When Tricia’s obstetrician told her that her unborn daughter’s heart defect couldn’t be fixed, “we were without hope,” Tricia says. “But Felice Heller, MD, of Connecticut Children’s, called us and said, ‘Don’t worry. We’ve seen plenty of these. Your daughter will be fine.’”

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Rylan.jpgRylan’s Story | Congenital Heart Defects

Just after birth, Rylan failed a routine test that measures blood oxygen in the body. He was immediately transported to Connecticut Children’s, where his parents learned Rylan not only had a hole in his heart, but also three other major heart defects. “Dr. Kirshbom came out to tell us how well Rylan did and all I wanted was to give him the biggest hug and say thank you again and again for mending Rylan’s broken heart,” his mother says.

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Patient_Story_Shemar_Champion-Child.jpgShemar's Story | Scoliosis

Shemar was named the 2014 Connecticut Champion Ambassador for Children’s Miracle Network Hospitals. Born with scoliosis, Shemar has had 10 surgeries since birth, and doctors estimate that he will need to have one every six months until he is fully grown.

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