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Health Information For Parents
When your child is diagnosed with autism spectrum disorder, there’s a lot to learn. You’re faced with new terms like “early intervention” and “positive behavior support.” It’s normal to feel overwhelmed.
But don’t worry — you’re not alone. Many parents have walked this path before. Many resources and support services are available to you.
Our 7-step checklist can help you find the best path forward. Learn about next steps for your baby, toddler, or preschooler.
Kids with autism might have language delays or trouble communicating with others. They may have unusual or repetitive behaviors, or troubles with learning. No two kids with autism are alike — and, as the parent, you’re the expert on your child.
So, when talking to doctors or therapists, ask lots of questions. Tell them your concerns. If you’re not happy with the answers, consider getting a second opinion.
Some kids with autism have other conditions like seizures, gastrointestinal problems, and trouble sleeping. If you have any health concerns, tell your doctor. Your child may need to see a specialist and have tests.
When you feel comfortable with your child’s autism diagnosis, learn about treatment options that may include therapy and education services.
By federal law, kids younger than 3 who have special needs are entitled to extra support to help them reach developmental milestones, like talking. These services are called early intervention and offered through an individualized family service plan (IFSP).
In early intervention, children learn with the help of therapists at home, at daycare, or at another facility. Parents and caregivers learn how to help improve their child’s language and communication. Some of the skills to work on include:
Each state runs its own early intervention program. Ask your pediatrician for a referral or visit the Early Childhood Technical Assistance Center directory for state-specific contact info.
Kids with autism age 3 or older may get an individualized education program (IEP) from their local school district. This plan will outline the need for things like speech therapy, occupational therapy (OT), or a classroom aide to help with positive behavior choices. To learn more, call your school district’s office of special education.
Children who do not qualify for an IEP may be able to get educational assistance through a 504 education plan, which provides support in a regular classroom to help with learning.
Therapy to help with the symptoms of autism can help kids thrive, but not all are covered by insurance. Coverage depends on your state — and it’s not always easy to figure out.
Here are ways to learn what is covered:
If you don’t have insurance, your state’s CHIP (Children’s Health Insurance Program) or Medicaid programs may offer coverage to your child. Medicaid also may be able to offer extra coverage if your health insurance doesn’t cover all expenses. Coverage is based on your child’s disability and need, not on your family’s income.
By law, childcare providers cannot discriminate against children with special needs. However, you do want to be sure that the daycare center or childcare provider you choose has the skills and setting necessary to safely accommodate your child. State agencies that handle early intervention usually can provide referrals to appropriate childcare providers.
As your child grows, find chances to socialize with peers and practice the skills learned in therapy. Parents of toddlers or preschoolers may consider joining a “Mommy and Me” class or schedule neighborhood play dates. These meet-ups can be a valuable learning opportunity for your child.
If possible, sign your child up for social skills training classes. These are specifically for kids who need extra help interacting with others. Kids learn about things like making eye contact, taking turns, and sharing. Most classes are led by a therapist or social worker, and might be covered by insurance or offered as part of IEP.
And don’t forget about social opportunities for yourself or your other kids. Many areas have support groups for parents or siblings of kids with autism. Being around others who are going through similar challenges can help you learn new ways of coping.
Life with a young child with autism can be overwhelming. So it’s important to take breaks and ask for help when you need it. This may be hard to do at first, but it will allow you to devote more time and energy to your family.
So, ask a family member for help with things like laundry or meal planning. Trade off with your partner watching your child so that each of you can get much-needed “me time.” Hire a sitter who feels comfortable caring for your child or consider respite care so that you can go out for a night.
Taking time for yourself can help you recharge. You’ll come back to your child ready for fun, love, and all that parenthood has to offer.
If you haven’t written a will or set up a legal and financial framework for your child’s future, do so. Talk with an attorney who specializes in special needs law and a financial advisor to find the best way to manage your assets and prepare financially for your child’s future.
Autism spectrum disorder affects a child’s ability to communicate and learn. Early intervention and treatment can help kids improve skills and do their best.
What teachers should know about autism, and teaching strategies to help students with autism do their best in school.
Here’s how to set boundaries and communicate your expectations in a nurturing, loving way.
Some kids may be eligible for individualized education programs in public schools, free of charge. Understanding how to access these services can help you be an effective advocate for your child.
You might have more on your plate than most parents, but it doesn’t mean you have to do it all alone. Here’s how to ask for help and avoid caregiver burnout.
If your child has special needs in the classroom, he or she may be eligible for a government-supported learning plan.
The government’s healthcare marketplace, or exchange, is the new way to shop for health insurance. But just how do you find the best coverage and sign up? Get answers here.
Having a plan for the future can help your big kid reach his or her full potential. Follow this 8-step checklist to help your child succeed during the elementary school years.
As your child moves toward adulthood, learn the tools you need to make the transition as smooth as possible. This 6-step checklist can help.
Note: All information is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.
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