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Health Information For Parents
Caring for a seriously ill child takes a tremendous toll on the whole family, and healthy siblings are no exception.
As parents, our exhaustion, stress, and uncertainty about how to respond to the needs of other kids can leave us feeling guilty and drain our reserves — and might tempt us to downplay or ignore the impact a child’s illness may have on his or her brothers and sisters.
Knowing what healthy siblings are going through and taking steps to make things a little easier can let you deal with many issues before they unfold.
Family routines and dynamics naturally change when a child is ill, which can confuse and distress healthy siblings. Besides fear and anxiety over the illness, they often have the feeling of loss of a “normal” family life, and loss of their identity within the family.
It’s normal for healthy siblings to:
The way siblings express their needs can vary greatly — some may act out, some may try be the perfect child, and many will do both.
Pay attention to any changes in kids’ behavior, and talk to them often about how they’re doing and what they’re feeling. The more room kids have to express their emotions, the less emotional upset and fewer behavioral problems they’re likely to have.
Signs of stress in kids can include any changes in sleep patterns, appetite, mood, behavior, and school functioning. Younger children may pick up on parental stress and show regressed behaviors (doing things they did when they were younger and had already outgrown).
Even if you don’t see any signs in your kids, you can be pretty sure that changes to their routine and seeing their parents and other family members upset is likely to be causing them stress.
While you may not be able to take away the source of your kids’ emotional pain, you can help ease their stress and make them feel secure, cared for, and supported.
These suggestions might help, but it’s also a good idea to find support (through counseling, a hospital support group, etc.) to help you take better care of all your children.
First, look forward. If you find yourself feeling guilty for not being a perfect parent to your healthy children, don’t beat yourself up — dwelling on the past is not productive. Instead, try to make a point of recognizing your kids’ feelings and needs now, and move on from there.
Keep the lines of communication open. Pay attention to siblings’ needs and emotions. Encourage them to talk about their feelings — the good, the bad, and the guilt-inducing — and try to read between the lines of their actions. This can be difficult when you’re exhausted, stressed, and away at the hospital or clinic for long periods of time, but a little attention and conversation can let your healthy kids know that they’re important and their needs matter.
Keep it “normal” as much as possible. Try to maintain continuity and treat your kids equally. Stick to existing rules and enforce them; besides minimizing jealousy and guilt, this also sends a strong optimistic message about your sick child’s recovery. And try not to fall into the trap of relying on healthy kids as caregivers before they’re ready. Accept help so that your healthy kids can stick to their typical routines as much as possible.
Say yes to help. Accepting help with transportation, meals, childcare, and other daily activities can take some pressure off of you so that you have the emotional reserves to be there for your family. You’ll also be teaching your kids a valuable lesson about accepting generosity from others.
It’s OK to have fun. Enjoying yourself and having fun (for a change) can go a long way toward relieving stress and recharging your battery. In addition to trying to keep a normal schedule of activities, whenever possible set aside some time for your kids to spend with friends and family without focusing on the illness. You also can set aside one-on-one time with your healthy kids where the focus is on them and everything that’s going on in their lives other than their sibling’s sickness.
Be patient with regressive behavior, especially on the part of younger kids, who may have trouble making sense of emotions. At a time when parents’ nerves are frazzled, it can be hard to stay patient and attentive, but it’s essential for siblings. However, it’s not a good idea to let kids — healthy or sick — behave inappropriately or get away with behaviors that you would not have allowed before the illness. Rather than make a child feel relaxed, this can increase anxiety, jealousy, or feelings of abandonment.
Include siblings in the treatment and care. Including healthy kids in some of the doctor visits and hospital sessions can help demystify the illness. They also can benefit from connections to other patients’ siblings. And giving healthy kids specific, non-threatening “jobs” can help them feel like an important part of the treatment process. Encourage their involvement and let them lead the way — maybe they want to help with physical therapy, for example, or make cards, books, or videos to keep a hospitalized child connected to life at home and school. Many hospitals offer sibling counseling groups, workshops, and other programs that can help your healthy kids feel less alone.
When your child has a serious or chronic illness, it’s hard to think beyond the next treatment. But with planning and communication, you can help your child balance treatment and academics.
When kids need intensive health care after they’re discharged from the hospital, it’s important that family and caregivers learn about the devices, equipment, and support they’ll need.
Help ease your child’s pain and anxiety with these exercises, complete with step-by-step instructions.
It’s common to put your own needs last when caring for a child you love. But to be the best you can be, you need to take care of yourself, too. Here are some tips to help you recharge.
When life throws problems your way, learn how to stay calm, de-stress, and solve problems.
As upsetting as it can be for a parent, conflict between siblings is very common. Here’s how to help your kids get along.
Brothers and sisters might not always get along. How can you keep the peace? Find out in this article for kids.
Negative emotions are impossible to avoid and everyone feels them from time to time. They may be difficult, but they don’t have to be stressful. Find out how to deal with stressful feelings.
Visit our stress and coping center for advice on how to handle stress, including different stressful situations.
All kids to worry at times, and some may worry more than others. But parents can help kids manage worry and tackle everyday problems with ease. Find out how.
How well we get through a stressful situation depends a lot on us. It’s how we deal with that makes all the difference. Here are some ways to understand and manage stress.
How can you get along better with your parents and have more fun together? Follow these five steps.
When your sibling has a serious illness, you may find yourself juggling some pretty intense and confusing emotions. Here are some ways to take care of yourself during this stressful time.
Taking care of a chronically ill child is one of the most draining and difficult tasks a parent can face. But support groups, social workers, and family friends often can help.
Feeling down? Got the blues? Everyone feels sad sometimes. Find out more in this article for kids.
Stress happens when you are worried or uncomfortable about something. You may feel angry, frustrated, scared, or afraid. Our article for kids will help you manage stress.
Note: All information is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.
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