“We Have Found a Family Here”

By Veronica R.
Last year my son was diagnosed with Duchenne Muscular Dystrophy. I started my journey taking a leap of faith and moving to Connecticut. Having heard of Connecticut Children’s Medical Center through family members that live near Hartford, it was as they say “a no brainer.” Having this opportunity, I had to take it. Understanding the outcome of his condition, he needed to be able to have a good quality of life and the opportunity to be as independent as possible.

That’s when I decided to move to Connecticut and seek help at Connecticut Children’s Medical Center.

In 2014, I noticed that my son was having some difficulty standing up and going up the stairs. Expressing my concerns to his primary doctor I asked to be referred to a physical therapist. There I was, told that there was a deficiency in his muscles and she referred me to the MDA Clinic. There he was, tested but the results were inconclusive and required further testing. In September of 2016 his diagnosis was confirmed as being Duchenne Muscular Dystrophy. Now he is on track with his medication and therapies. We have found a family here at Connecticut Children’s.
rosario-blog-photo-1When I first applied they were not accepting new patients at that time, but thanks to their care coordinators, found a way to receive them. Once that happened everything fell into place. His appointments started coming in, one right after the other. These past 9 months have been full of appointments but it is all worth it knowing that my son is receiving the best care possible.

My experience with Connecticut Children’s has been wonderful. Everyone that we have been in contact with has gone up and beyond what I could have expected. When my kids have an appointment they don’t think or feel like they’re going to a hospital.

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