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Patient Stories

Beyond the Face: A Tribute to Craniofacial Team Patients at Connecticut Children’s

This moving documentary goes behind-the-scenes of Connecticut Children’s Beyond the Face event, a project implemented by the Craniofacial team to help celebrate the facial differences of our patients.

Emma’s Story

Emma with Neurosurgeon Paul Kanev, MD ("Dr. Paul")

At 5 months old, Emma was diagnosed with Crouzon Syndrome—a rare condition that can cause early fusion of the skull. Pictured here with Neurosurgeon Paul Kanev, MD (“Dr. Paul”), Emma has gone through multiple surgeries, procedures and appointments, but has met each challenge with a smile!

Read Emma’s story > 

Camden’s Story

Grateful mother Kristen shares her son Camden’s incredible journey living with a bilateral cleft palate and the care he received at Connecticut Children’s.

Read Camden’s story >

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