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Down Syndrome Program

Global statistics indicate that approximately one in every 700 babies is born with Down syndrome (Trisomy 21), a chromosomal condition caused when some or all of a person’s cells have an extra full or partial copy of chromosome 21. In Connecticut, an estimated 40 to 50 children are born with Down syndrome each year.

Children with Down syndrome have an increased risk for medical conditions including congenital heart defects, respiratory and hearing problems, endocrine disorders, gastrointestinal problems, and communication and feeding issues. In addition, children with Down syndrome experience delays in their growth and development and usually require extra supports within their educational program.

The Down Syndrome Program (DSP) is designed to support the need for integrated and coordinated care for children with Down syndrome. The DSP offers a consultative service that works in partnership with the child’s doctor and family. The DSP is a centralized resource for Connecticut Children’s subspecialists and pediatricians, primary care physicians and family doctors from across the state to help care for infants, children and adolescents with Down syndrome and support them in achieving their full potential.

The DSP is a consultative service that works in partnership with the child, their family and doctor to integrate aspects of developmental needs including:

  • Medical
  • Behavioral
  • Educational

The DSP offers an integrated system of services that include:

  • Consultative Evaluation
  • Information and Education
  • Resources and Support Services
  • Transitional Assistance
  • Family Counseling

Any child with a diagnosis of Down syndrome and concerns with general health, speech and language, behavior, and/or education can be referred to the program. Speak to your child’s primary care provider for a referral.

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