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Health Information For Parents
If medicine doesn’t control seizures in epilepsy, sometimes doctors prescribe a ketogenic (or keto) diet. A ketogenic diet is a strict high-fat, low-carbohydrate diet that can reduce, and sometimes stop, seizures.
It’s called “ketogenic” because it makes ketones in the body. Ketones are made when the body uses fat for energy. By replacing carbs with fat in the diet, the body burns more fat and makes more ketones.
The ketogenic diet is prescribed by a doctor. Kids on the diet need to be followed closely by a dietitian to make sure they follow the diet and get the nutrients they need. The diet starts with fasting during an overnight hospital stay.
Children with seizures that are not well-controlled by medicines (called intractable epilepsy) and severe epilepsy syndromes (such as infantile spasms or Lennox-Gastaut syndrome) might benefit from a ketogenic diet.
Studies show that the ketogenic diet also may help treat other conditions, such as diabetes, obesity, and even cancer.
Although the ketogenic diet for epilepsy has been around since 1920, doctors aren’t exactly sure how the higher ketone levels works. Some seizure types seem to respond better than others to the ketogenic diet.
In babies, the keto diet is given in formula. Young children may be fed by a tube that is place in the stomach by a surgeon. This helps the child stay on the diet.
You should know if a ketogenic diet works for your child within a few months. If it does, your doctor may recommend weaning your child off the diet after 2 years of seizure control. The weaning process is done over several months to avoid triggering seizures.
Some people stay on a ketogenic diet for years.
The ketogenic diet is a safe treatment for epilepsy in children. There are some possible side effects with long-term use, though, including:
The ketogenic diet isn’t a quick, easy fix. It can be very hard to stay on such a strict diet. To help your child:
Following the ketogenic diet requires regular follow-up with your doctor and dietitian. Be sure to keep every appointment.
For many families, the hard work pays off with better seizure control and less medicines.
Seizures are a common symptom of epilepsy, a condition that affects millions of people worldwide. Learn all about epilepsy, including what to do if you see someone having a seizure.
Epilepsy causes electrical signals in the brain to misfire, which can lead to multiple seizures. Anyone can get epilepsy at any age, but mostÂ new diagnoses are in kids.
It comes from a Greek word meaning “to hold or seize,” and seizures are what happen to people with epilepsy. Learn more about epilepsy in this article written just for kids.
Kids with childhood absence epilepsy (CAE) have seizures where they “blank out” for a few seconds. Most kids will outgrow CAE.
Infantile spasms (IS) is a seizure disorder in babies. The spasms usually go away by age 4, but many babies with IS will have other kinds of epilepsy later.
Intractable epilepsy is when a child’s seizures can’t be controlled by medicines. Doctors may recommend surgery or other treatments for intractable seizures.
Lennox-Gastaut syndrome (LGS) is a seizure disorder. Children with LGS have several different kinds of seizures.
Note: All information is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.
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