Cystic Fibrosis The Central Connecticut Cystic Fibrosis Center (CCCFC) is a collaborative effort between Connecticut Children’s Medical Center and Hartford Hospital to provide care and treatment to children and adults living with cystic fibrosis (CF), a hereditary chronic lung disease. Accredited by the Cystic Fibrosis Foundation, the Central Connecticut Cystic Fibrosis Center is nationally recognized for its quality improvement projects and commitment to education at other cystic fibrosis centers around the country. The Central Connecticut Cystic Fibrosis Center is a leader in the prevention and management of cystic fibrosis and provides comprehensive patient care, broad-based educational programs, and clinical and basic research opportunities. Care Team The Central Connecticut Cystic Fibrosis Center care team is a multidisciplinary group that includes board-certified physicians, nurses, registered dietitians, social workers, respiratory therapists, physical therapists, medical students and pediatric residents. Connecticut Children’s family-centered environment means children, parents and physicians are working together when it comes to CF care and treatment. Once a child reaches age 18, he or she is transitioned to Hartford Hospital for uninterrupted care and treatment. Cystic Fibrosis Family Advisory Board The pediatric patients, parents and healthcare professionals at Connecticut Children’s are uniquely qualified and committed to embrace families in need of physical, emotional and social support within the cystic fibrosis community. The Cystic Fibrosis Family Advisory Board acts as a voice for improvement and is a forum to share the issues or concerns of patients and families to the Central Connecticut Cystic Fibrosis Center. Meetings are held on the third Wednesday of the month (September-May) from 6:30-8 pm in Connecticut Children’s conference room E, near the cafeteria. To RSVP, call 860.545.9876.
