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Mary Chang MD
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Michael Isakoff, MD
Division Head, Center for Cancer and Blood Disorders | Director, Sarcoma Program | Director, Reid R. Sacco Adolescent and Young Adult Cancer Program | Medical Director, Connecticut Children’s Clinical Trials Unit
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Article
Beyond Morquio Syndrome: The Art of Thriving With a Rare Disease Every Friday, 24-year-old Monique Hilson spends the better part of the day at Connecticut Children’s infusion center. There, she receives a medication to ease the effects of the rare disease she was born with. To pass the time, she makes and shares art. “Her artwork is incredible
Monique and her nurse, Julia, spend many days together
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