The Central Connecticut Cystic Fibrosis Center (CCCFC) is a collaborative effort between Connecticut Children’s and Hartford HealthCare to provide care and treatment to children and adults living with Cystic Fibrosis (CF), a hereditary chronic lung disease.
Accredited by the Cystic Fibrosis Foundation, the Central Connecticut Cystic Fibrosis Center is nationally recognized for its quality improvement projects and commitment to education at other cystic fibrosis centers around the country. In partnership with UCONN Health, we also run one of the top Cystic Fibrosis Newborn Screening Programs in the country.
The Center is a leader in the diagnosis, prevention and management of cystic fibrosis, and provides comprehensive patient care, broad-based educational programs, and clinical and basic research opportunities. Outcome measures for pulmonary function and nutrition have been in top tier nationally for more than a decade.
The Central Connecticut Cystic Fibrosis Center care team is a multidisciplinary group that includes board-certified physicians, nurses, registered dietitians, social workers, respiratory therapists, medical students, pediatric residents and pediatric pulmonary fellows. Our care team not only provides care locally to our CF patients, but many of them have roles on multiple national committees at the CF Foundation including the Center Director Committee, Partnership Champions Committee, Newborn Screening Committee, the Data Safety Monitory Board, and provide mentorship to other team members nationally through CF Foundation mentor programs.
Connecticut Children’s family-centered environment means children, caregivers and physicians are partnering together for care of CF and determine treatment goals.
The transition process to adult CF care begins in the adolescent years to help prepare patients for more independent care. At age 21, patients transition to Hartford HealthCare (or the adult CF care center of their choice) for uninterrupted care and treatment.
Cystic Fibrosis Patient Family Advisory Council
The pediatric patients, parents and healthcare professionals at Connecticut Children’s are uniquely qualified and committed to embrace families in need of physical, emotional and social support within the cystic fibrosis community.
The Cystic Fibrosis Patient Family Advisory Council acts as a voice for improvement and is a forum to share the issues or concerns of patients and families to the Central Connecticut Cystic Fibrosis Center.
Meetings are held on the second Wednesday of the month from 7:00-8:30 pm via ZOOM invite. If interested call RB Curtis, Program Coordinator at 860.837.7575.