Pediatric Celiac Disease: A Parent’s Guide to Food and Nutrition
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Learning your child has celiac disease can feel overwhelming at first. We think about how food choices, social situations and proper nutrition will come into play. But with the right tools, knowledge, and support, families can manage and enjoy a gluten-free lifestyle.
Here’s a comprehensive guide from our pediatric nutrition expert, Beth Chatfield, RDN, to help you and your child navigate everything from grocery shopping to eating out.
Shopping smart: the 101 on gluten-free labels
One of the first steps in managing celiac disease is learning how to navigate the grocery store. Reading food labels becomes second nature over time, but there are some key differences to understand:
Certified gluten-free vs. labeled gluten-free: Any product that says "gluten-free" on the label must meet FDA regulations of containing less than 20 parts per million of gluten. Not all safe foods will say “gluten-free” on the package because this specific labeling is still voluntary.
Certified gluten-free foods are those that have been independently verified by organizations such as the Gluten-Free Certification Organization (GFCO). These offer an added layer of assurance for families concerned about cross-contact and safety.
Always read the ingredients list thoroughly. Watch out for hidden sources of gluten such as wheat starch, malt (often derived from barley), or ambiguous terms like “natural flavors.”
Beware of cross-contamination
Even a small amount of gluten can set off symptoms. Cross-contamination—when gluten-free food comes into contact with gluten-containing foods—is a major concern. Here are helpful tips:
In the kitchen: Use separate toasters, cutting boards, and cooking utensils for gluten-free foods.
Grills and pans: Shared cookware can be a source of contamination. It’s best to use separate pans or grill mats.
Condiments: Double-dipping knives into peanut butter, butter, or mayonnaise after touching regular bread can contaminate the entire container. Consider labeling certain jars and tubs “gluten-free only.”
Would you like to schedule an appointment with Gastroenterology?
Going out to restaurants can feel risky, but it doesn’t have to be restrictive or isolating. Here are ways to ensure your child can enjoy a culinary experience out:
Call ahead: Speak to the manager or chef about gluten-free options and their kitchen practices.
Ask specific questions: Do they use a dedicated fryer? Is there a risk of cross-contact on shared grills? Do they have gluten-free soy sauce?
Bring backup: Having a few snacks or a meal on hand, especially for parties or school events, ensures your child always has something safe to eat.
Use technology: Apps like Find Me Gluten Free can help you find and vet restaurants with good reviews from the gluten-free community.
Don't overlook medications and supplements
Yes, gluten can sometimes be found in unexpected places—including medications as a binder or filler. Always check with your pharmacist and use trusted resources like glutenfreedrugs.com or Beyond Celiac’s medication list.
Vitamins and supplements should also be gluten-free. Look for certified products or ask your doctor for safe options.
Encouraging proper nutrition for your child
Kids with celiac disease may be at risk for deficiencies because of previous damage to the small intestine or from limited food choices. Key nutrients to watch include:
Iron
Calcium
Vitamin D
B Vitamins (especially B12 and folate)
Zinc
Fiber
Encourage a balanced, naturally gluten-free diet that includes fruits, vegetables, lean proteins, dairy, and whole grains like quinoa, brown rice, and millet. If your child is a picky eater or has lingering digestive symptoms, reach out to a pediatric GI expert specializing in celiac disease.
Even a small amount of gluten can set off symptoms. Cross-contamination—when gluten-free food comes into contact with gluten-containing foods—is a major concern.
Beth Chatfield, MS, RD,
Connecticut Children's
Trusted resources for families
Nowadays, there are a wide range of reputable tools and communities ready to support you:
Life with celiac disease is a journey, but it doesn’t have to be a lonely or limiting one. With the right knowledge and a little preparation, your child can enjoy a full, active, and healthy life. You’ve got this.
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