Neurology Resources What to Expect To help your child prepare for his/her visit, we have created special picture stories that can teach your child what to expect. What to Expect at a Neurology Appointment What to Expect During EEG Testing EEG Testing at Connecticut Children’s EEG – Sedation EEG – No Sedation EEG – No Sedation (en Español) Helpful Links American Headache Society Committee on Headache Education American Headache Society Committee on Headache Education (ACHE) is charged to develop and manage the educational activities of AHS, particularly the Annual Meeting and Symposia. The Committee also oversees the accreditation process for AHS’s educational program, including the annual review of the educational mission and objectives of AHS. Children’s Tumor Foundation The Children’s Tumor Foundation drives research, expands knowledge and advances care for the NF community. CureCMD CureCMD aims to find a cure for congenital muscular dystrophy. CureSMA CureSMA aims to find a cure for spinal muscular atrophy. Epilepsy Foundation of America The Epilepsy Foundation of America raises awareness about epilepsy and promotes research for a cure. Inherited Neuropathies Consortium The Inherited Neuropathies Consortium (INC) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of CMT and improving the care of patients. MDA Care Center MDA offers numerous services and resources that provide care, support and guidance to patients and families. National Autism Association The National Autism Association offers information and resources for urgent needs of the autism community. National Tourette Syndrome Association The National Tourette Syndrome Association offers many resources for children, teens and parents to help families cope with the problems that occur with Tourette syndrome. The Sturge-Weber Foundation The Sturge-Weber Foundation provides support to individuals with port wine birthmark-related conditions. The Foundation acts as a clearing house for information and a focus for research. Tourette Syndrome The Tourette Association of America is a national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders. Tuberous Sclerosis Alliance The TS Alliance is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected.
