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Resources

Craniofacial Family Advisory Board

The Craniofacial Family Advisory Board is a group of volunteers that supports craniofacial families. Meetings are held 3-4 times per year in early evenings at the UTC Family Resource Center on the second floor of Connecticut Children’s main campus in Hartford. Members can talk with other parents of craniofacial patients and share their personal experiences, as well as plan events such as lemonade stands, bake sales, the holiday party, picnics and more.

If you or your child has received care from Connecticut Children’s Craniofacial Team, you are eligible to join the Craniofacial Family Advisory Board. To sign up, contact Glendalee Morales via email or at 860.545.9360.

Parent-to-Parent Network at Connecticut Children’s

Our Parent-to-Parent Network provides support for parents and pediatric patients by connecting them to other Connecticut Children’s families who have experienced similar diagnoses and treatments. For more information, please call 860.545.9360.

American Cleft Palate-Craniofacial Association

The American Cleft Palate-Craniofacial Association aims to advance patient care and research for individuals affected with cleft lip, cleft palate and other craniofacial anomalies.

Ameriface

Ameriface provides a variety of resources for families of children with facial differences, including education materials, networking opportunities, a toll-free support hotline and more.

Children’s Craniofacial Association

The Children’s Craniofacial Association offers several resources for children and families affected by facial differences.

Craniokids

Craniokids provides a forum where families can seek and provide emotional support, share experiences, and learn about craniosynostosis.

The International 22q11.2 Foundation

The International 22q11.2 Foundation provides resources and support on the 22q11.2 deletion or duplication.

BEYOND THE FACE
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