Connecticut Children's Blog
Connecticut Children's Blog provides important perspective on pediatric health from the same voices that care for our patients at Connecticut Children's Medical Center.
At Connecticut Children’s, some of the top physician-researchers in the nation are doing whatever it takes to transform care for children with rare diseases. We sat down with Gyula Acsadi, MD, PhD, division head of neurology at Connecticut Children’s, to learn more about recent developments in treatments for children with rare neurological disorders. What are […]
Posted In: Neurology, Rare Diseases
Isabella O’Connell was just 3 months old when her pediatrician noticed ‘cafe au lait’ spots suddenly appearing on her skin. “The spots were appearing at such a rapid pace” said Isabella’s mother, Melissa Kulak. “Thankfully, he referred us to a neurologist at Connecticut Children’s Medical Center.” Shortly after being referred, Isabella had her first appointment […]
Posted In: Neurology
Nicholas’s father joins our blog to share his son’s story and help raise awareness of epilepsy. The boy in the picture is my son Nicholas. He is 7 years old and was diagnosed with infantile spasms around 6 months of age. He had 50 to 60+ seizures a day for about 2 1/2 years straight. […]
Posted In: Neurology
By Veronica R. Last year my son was diagnosed with Duchenne Muscular Dystrophy. I started my journey taking a leap of faith and moving to Connecticut. Having heard of Connecticut Children’s Medical Center through family members that live near Hartford, it was as they say “a no brainer.” Having this opportunity, I had to take […]
Posted In: Neurology
By Alex B., patient at Connecticut Children’s 17 year old Alex B. shares her Make A Wish journey and how she’s living life more passionately than ever. To find out more about Transverse Myelitis or to follow Alex’s blog, please visit https://alexandherjourney.wordpress.com/. About 2, almost 3 years ago a girl that I’ve known all my […]
By Alex B., patient at Connecticut Children’s Transverse Myelitis is a rare inflammatory disease causing injury to the spinal cord that can leave sufferers with permanent disabilities or paralysis. 17 year old Alex B. shares her journey with TM, what she’s learned and how it’s helped her discover who she is. To find out more […]
