Neurosurgery Resources External Organizations Children’s Brain Tumor Foundation Children’s Brain Tumor Foundation is dedicated to improving the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors. Hydrocephalus Association The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus. Spina Bifida Association The Spina Bifida Association serves adults and children who live with the challenges of spina bifida. It is dedicated to enhancing the lives of those with spina bifida and those whose lives are touched by this challenging birth defect. The American Syringomyelia and Chiari Alliance Project The American Syringomyelia and Chiari Alliance Project is one of the main Chiari resources endorsed by the American Association of Neurological Surgeons. American Association of Neurological Surgeons Developed by neurosurgeons, this resource provides patients and their families trustworthy information on a wide range of neurosurgical conditions and diseases. Learn about disease and injury risk factors, symptoms, diagnosis and both surgical and nonsurgical treatment options. Internal Resources Standardized Measurements for Down Syndrome Researchers at Connecticut Children’s have established exacting measurement standards to assist clinicians around the world with the evaluation and management of children with Down syndrome. Measurement technique and performance methods for the performance of Condyle-Axial Interval (CAI) and Atlanto-Axial Interval (AAI) to include instructions for calculation of segmental movement. Measurement technique and performance methods for the performance of Basion-Axial Interval (CAI) and Neural Canal Width (NCW) to include instructions for calculation of segmental movement. Standardized Measurements in Complex Chiari Malformation Researchers at Connecticut Children’s have established exacting measurement standards to assist clinicians around the world with the evaluation and management of this congenital malformation of the craniocervical junction. Access the technique guide for performance of pB-C2 and Clival Canal Angle (CXA)
