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Health Information For Parents
Muscular dystrophy (MD) is a genetic (inherited) disorder that causes the muscles in the body to gradually weaken and eventually stop working. It’s caused by incorrect or missing genetic information that prevents the body from correctly making the proteins needed to build and maintain healthy muscles.
Over time, people with MD lose the ability to do things like walk, sit upright, breathe easily, and move their arms and hands.
There is no cure for MD, but doctors are working on improving muscle and joint function and slowing muscle deterioration so people with MD can live as actively and independently as possible.
There are different types of MD; some start in infancy, others may not appear until early adulthood. Common types are:
Students with MD may:
Symptoms can vary among students with MD, as can the severity of related problems. Teachers and classmates can be supportive by being aware of any changes in symptoms and watching for signs of abnormal fatigue throughout the day.
Encourage your students with MD to participate in all classroom activities at their own pace and comfort level.
Teachers should have realistic expectations for parents of kids and teens with MD. Exhausting care routines and health care appointments can take up big chunks of time and energy.
Muscular dystrophy is a disorder that weakens a person’s muscles over time. People who have the disease can gradually lose the ability to do everyday tasks.
Wheelchairs are a way for some people to be independent, despite illnesses or injuries. Find out more in this article for kids.
Some kids may be eligible for individualized education programs in public schools, free of charge. Understanding how to access these services can help you be an effective advocate for your child.
If your child has special needs in the classroom, he or she may be eligible for a government-supported learning plan.
Lots of kids have special needs. Find out more in this article for kids.
You might have more on your plate than most parents, but it doesn’t mean you have to do it all alone. Here’s how to ask for help and avoid caregiver burnout.
These 10 steps can help take the anxiety and worry out of your child’s financial future and make sure that your child will be taken care of even after you’re gone.
There are many camp choices for kids with special needs. From highly specialized camps to regular camps that accommodate kids with special needs, options abound.
Note: All information is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.
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